News | Congenital Heart | July 19, 2017

AHA and ACC Publish New Data Dictionary for Ambulatory EHRs in Pediatric and Congenital Cardiology

Document provides key data elements and definitions to help improve patient care across wide range of disease processes

AHA and ACC Publish New Data Dictionary for Ambulatory EHRs in Pediatric and Congenital Cardiology

July 19, 2017 — The American Heart Association (AHA) and the American College of Cardiology (ACC) recently published the "2017 AHA/ACC Key Data Elements for Ambulatory Electronic Health Records in Pediatric and Congenital Cardiology" in the Journal of the American College of Cardiology (JACC).

This document creates the first extensive data dictionary, with data elements and definitions, specifically for use in the outpatient — or ambulatory — domain of pediatric and congenital cardiology.

The need for a master set of data elements and definitions is of topical interest for the pediatric and congenital heart disease clinician where data sharing is critical to identify best practices, develop evidence-based guidelines and determine statistical significance in patient populations. There is a wide range of disease processes across a relatively small set of patients in pediatric and congenital heart disease; this fact is in contrast to adult cardiac disease where there is a large population of patients who experience a more homogenous set of disease processes.

For more information: www.onlinejacc.org

Related Content

Dee Dee Wang runs Henry Ford Hospital's 3D printing lab for its complex structural heart cardiology program.

Dee Dee Wang, M.D., runs Henry Ford Hospital's 3-D printing lab that supports its complex structural heart program.

Feature | 3-D Printing| October 13, 2017 | Dave Fornell
Three-dimensional (3-D) printed anatomic models created from a patient’s computed tomography (CT), magnetic resonance...
Abbott Initiates U.S. Pivotal Study of Amplatzer Device for Patent Ductus Arteriosus
News | Congenital Heart| September 05, 2017
Abbott announced it has initiated a U.S. pivotal clinical study evaluating the safety and effectiveness of a modified...
New Multi-Center Research Effort to Focus on Early Life Origins of Heart Health
News | Congenital Heart| June 23, 2017
Heart health in children will be the focus of three closely synergistic research projects and an integrated...
Italian Boy Becomes Youngest Patient Bridged to Transplant With SynCardia Total Artificial Heart

Andrei, 12, is the world’s youngest patient to be bridged to transplant with the SynCardia Total Artificial Heart. He is pictured after his heart transplant with his surgeon, Antonio Amodeo, M.D., at Bambino Gesù Children’s Hospital in Rome, Italy. Photo courtesy of Business Wire.

News | Congenital Heart| June 22, 2017
A 12-year-old boy at Bambino Gesù Children’s Hospital in Rome, Italy, has become the world’s youngest patient to be...
wearable defibrillators prevent sudden cardiac death in pediatric patients
Feature | Sudden Cardiac Arrest| May 11, 2017
May 11, 2017 — A new study shows that the use of a wearable cardioverter defibrillator (WCD) is safe and effective in
pediatric cardiomyopathy, management, clinical outcomes, NIH study, Circulation Heart Failure, Children's Hospital of Michigan
News | Congenital Heart| April 04, 2017
A multi-center study done in the United States and Canada may have global applicability for families with children...
Echopixel, True 3D Viewer, interactive virtual reality, pediatric surgery, increased clinical adoption
News | Advanced Visualization| March 21, 2017
March 21, 2017 — EchoPixel recently announced progress in the clinical adoption of its True 3D...
Melody transcatheter pulmonary valve, FDA expands indication, Melody for use in replacing failed surgical valves
Technology | Heart Valve Technology| March 14, 2017
March 14, 2017 — The United States Food and Drug Administration (FDA) has expanded use of the Medtronic Melody Transc
Stratasys, 3DHEART trial, open enrollment, 3-D printed pediatric heart models
News | 3-D Printing| March 13, 2017
Stratasys Ltd. announced last week enrollment is now open for 3DHEART, an investigator-initiated trial. 3DHEART, which...
Philips, Phoenix Children's Hospital, strategic partnership, congenital heart
News | Congenital Heart| March 07, 2017
Philips and Phoenix Children’s Hospital (Arizona) announced a long-term strategic partnership with a total value of up...
Overlay Init